John Austin Millen will be turning 3 on November 19th. He has been diagnosed with a brain stem tumor called DIPG – Diffuse Intrinsic Pontine Glioma. This is cancerous and inoperable. It is located in a part of the brain that controls vital functions. Most children with this kind of tumor survive a mere 9-12 months from the time of diagnosis.

John presented symptoms the first week of October. He was admitted and diagnosed at Women and Children’s Hospital in Buffalo and will begin radiation treatment at Roswell Park Cancer Institute on October 20th. The radiation will likely shrink the tumor for a period of time; however, this disease progresses rapidly with very few options beyond a single course of radiation that have proven effective.

Our time is limited, our prayers are urgent and we are doing everything in our power for our precious boy. He has a large team of Doctors, and medical professionals on his team, they are professional, with excellent credentials and very supportive; albeit limited in their ability to offer a “cure.”

Our little boy will not ride a school bus to kindergarten, will never scare his sister with a frog, will never have his first kiss, his first car, his first date, prom, or graduation. He will never grow up, fall in love, marry and have a family of his own.

What he will have is a happy, full, normal life for as long as we are able to provide him with it. Playing with his sister and his friends, being with Mamoo and Dadoo, cuddling with Nonni, and helping Poppy in the garden, snuggling with Mama P over some wonderful books, and giggling with his cousins under a blanket tent.

Please, if you pray…please pray hard! even for the smallest of miracles.

John’s Bedroom Makeover