Tionna

tionna

Tionna was born October 25 2002, and was diagnosed in 2007 with Atypical Rett Syndrome and Epilepsy. Rett Syndrome is a unique developmental and neurological disorder that is recognized in infancy and seen almost in girls. RS results from a mutated gene in the brain of the child at the time of conception. It is unknown why the mutation occurs. RS causes problems in brain function that are responsible for cognitive sensory emotional motor and autonomic function. These can include learning speech, sensory sensations, mood, and movement breathing cardiac function, as well as chewing, swallowing and digestion. Atypical Rett which Tionna has, is a more severe version of the disorder.

Tionna cannot walk or talk, and is severely globally developmentally delayed. She has only hit milestones of an infant. Tionna loves being read to as well as listening to music; specifically Sade! She loves toys that light up and play music. She has sensory issues which make getting her hair done a task. She loves taking baths or just sitting in a hot tub. She also likes to laugh and jump around Mom’s bed (Mom calls her “her little monkey”). Her bedroom makeover will be sponsored by the girls from the Sacred Heart Academy Ministry Camp on July 3, 2013.

Tionna’s Bedroom Makeover